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Diagnostic errancy is devastating for individuals with rare diseases and their families. To understand her son’s differences, Mother Lioness relentlessly travels the African savannah. Merlin is a cute feline. He lives in a South African village with his mother, a...
When the two elder members of a family of wild boars have to look after two small boarlets affected by a disease that prevents them from seeing properly and having a sense of smell, things do not go as planned.Together, they will have to deal with the difficult,...
A la hora de la merienda, cerca de la chimenea, Abuela Lobo cuenta a los lobatos la historia de Milo, un joven lobo extraño que tenía dificultades para hablar y entender.Un joven lobo con una mancha de color granate, en forma de corazón, cerca de la boca…SOBRE LA...
Arno es un adorable pajarito lleno de vitalidad. Pero, un día, el viento anuncia a sus padres que padece una enfermedad que le tomará todo lo hermoso que tuvo a lo largo de los años.A pesar de esto, ante la injusticia, la sonrisa deArno permanece, como el recuerdo...
Cuando los hermanos mayores de una familia de jabalíes tienen que cuidar de dos jabatos que padecen una enfermedad que les impide ver y sentir correctamente, las cosas no se desarrollan como previsto.Juntos, tendrán que enfrentarse a lo más difícil, imprevisible y...
A true sensory experience, this book invites us to discover the diversity and variability of rare diseases. Using a mixture of different visual art techniques, Lucie Albon’s artwork conveys the full complexity of rare diseases. As each rare disease has a unique impact...
At snack time, by the fireplace, Grandmother Wolf tells her wolf pups the story of Wolfy, a strange little wolf who had difficulty speaking and understanding certain things. A little wolf with a heart-shaped, garnet-coloured spot near his mouth...ABOUT THE AUTHORSSonia...
Arno is an adorable little sparrow full of energy. But one day, the wind told his parents thatArno had a disease that would take away the beautiful things he had acquired over the years. However, despite life’s injustice, Arno's smile remains. His smile is an eternal...
La errancia diagnóstica es devastadora para las personas con enfermedades raras y sus familias. Para entender las diferencias de su hijo, Mamá Leona recorre sin descanso la sabana africana.SOBRE LA AUTORALa secretaria médica, Sonia Goerger, lleva muchos años recibiendo...
Sacha es un gatito travieso al que le gusta gastar bromas a su madre. Sufriendo una enfermedad neuromuscular, perderá gradualmente el uso de sus patas. ¡Pero estar en una silla de ruedas no le impedirá seguir jugando con sus compañeros!SOBRE LA AUTORALa secretaria...
María es una ratona muy pequeña, más pequeña que los demás. Tiene acondroplasia, una enfermedad genética que le impide crecer normalmente.¿Será su pequeño tamaño un obstáculo para lograr grandes cosas?SOBRE LA AUTORALa secretaria médica, Sonia Goerger, lleva muchos años...
Marie is a very small mouse, smaller than the others. She has Achondroplasia, a genetic disease that prevents her from growing normally. Will her small size be an obstacle to achieving great things?ABOUT THE AUTHORSMedical secretary, Sonia Goerger has been...
Diagnostic errancy is devastating for individuals with rare diseases and their families. To understand her son’s differences, Mother Lioness relentlessly travels the African savannah. ABOUT THE AUTHORSMedical secretary, Sonia Goerger has been welcoming and meeting...
Diagnostic errancy is devastating for individuals with rare diseases and their families. To understand her son’s differences, Mother Lioness relentlessly travels the African savannah. ABOUT THE AUTHORS Medical secretary, Sonia Goerger has been welcoming and meeting...
Marie is a very small mouse, smaller than the others. She has Achondroplasia, a genetic disease that prevents her from growing normally. Will her small size be an obstacle to achieving great things?ABOUT THE AUTHORS Medical secretary, Sonia Goerger has been...
Sacha is a mischievous little cat who likes to play pranks on his mom. Suffering from a neuromuscular disease, he will gradually lose the use of his legs. But, being in a wheelchair will not prevent him from continuing to play with his comrades!ABOUT THE AUTHORSMedical...
Sacha is a mischievous little cat who likes to play pranks on his mom. Suffering from a neuromuscular disease, he will gradually lose the use of his legs. But, being in a wheelchair will not prevent him from continuing to play with his comrades!ABOUT THE AUTHORS Medical...
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