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For the average person, genetic testing has two very different faces. The rise of genetic testing is often promoted as the democratization of genetics by enabling individuals to gain insights into their unique makeup. At the same time, many have raised concerns that genetic testing and sequencing reveal intensely personal and private information. As these technologies become increasingly available as consumer products, the ethical, legal, and regulatory challenges presented by genomics are ever looming. Assembling multidisciplinary experts, this volume evaluates the different models used to deliver consumer genetics and considers a number of key questions: How should we mediate privacy and other ethical concerns around genetic databases? Does aggregating data from genetic testing turn people into products by commercializing their data? How might this data reduce or exacerbate existing healthcare disparities? Contributing authors also provide guidance on protecting consumer privacy and safety while promoting innovation.

Détails
Auteur
I. Glenn  Cohen , Nita A.  Farahany , Henry T.  Greely , Carmel  Shachar
Marque
Cambridge University Press
Collection
n.c
Parution
2021-09-16
Pages
n.c
EAN papier
9781108836616
Langue
Anglais
Informations ebook
EAN PDF
9781108858014
Prix
53,22 €
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Nb pages copiables 0
Nb pages imprimables 0
Taille du fichier 4987 Ko
Ce livre est accessible aux handicaps   Informations sur l'accessibilité
EAN EPUB
9781108877961
Prix
53,22 €
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Nb pages copiables 0
Nb pages imprimables 0
Taille du fichier 3328 Ko
Ce livre est accessible aux handicaps   Informations sur l'accessibilité
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